Living With Lyme Disease, Part 2

living with Lyme disease
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I have a confession. I’ve put off writing this piece for as long as I can.

I had intentions of following up to part 1 of this series much sooner, but it simply hasn’t happened. Until now.

If you’re wondering why I’ve procrastinated for so long,

I’ll let you in on a little secret

Lyme disease stinks. 


I said it.

Some days

I just don’t wanna talk about it.

Is that bad?

What I mean to say is some days I don’t want to think about it, or deal with it or constantly be reminded of it.

But I do think about.

And I am dealing with it.

And (due to chronic pain, fatigue, and other ongoing symptoms) I’m constantly reminded of it.

Maybe you can relate?

But, when I think about why I started writing this blog I’m reminded of my passion to share my story and help other people in their personal health or life journeys, whether it’s Lyme disease, diabetes, cancer, autoimmune issues, or the myriad of health conditions or difficult situations that exist.

So, I’m truly sorry for keeping this to myself for so long.

Continuing from where I left off in Living With Lyme Disease., Part 1

Living With Lyme Disease (Part 2)

I had already gone to two different doctors in two months (for two different tick bites) who told me my ongoing illness and symptoms were just “tick fever” and it had to run its course. Unfortunately, I still felt like I had a bad case of the flu all the time. I was achy all over and extremely weak. I found it difficult to have enough energy to teach my young students each day and my coloring was pale…

A couple of months later I returned to the doctor to get opinion and saw a nurse practitioner who really listened to my concerns, and first expressed the possibility that I might have Lyme disease.

She also recognized that Lyme disease vectors know no borders. (I later learned that she had a family member who had Lyme.)

She prescribed 14 days of doxycycline, which I was so thankful for then, not knowing that it was “too little, too late”.

At this point I was in the early disseminated stage  and the spirochetes had already been given enough time to start damaging my body.

As I would later learn, I needed a more comprehensive medical intervention for the damage the Lyme spirochetes had caused and were continuing to cause. This is because I was not promptly and properly treated from the beginning, when I first got the tick bites.

If I’d been appropriately treated the first time (I went to the doctor with the Lyme symptoms after being bit by tick #1) I most likely would have made a complete and full recovery.

Or, if I’d received treatment after tick bite #2, because not much time had passed, I still stood a fighting chance of making a full recovery.

Unfortunately, this did not happen, just like it hasn’t happened for so many Americans each year.

It took 18 long months and visiting several specialists and 5 different doctors for me to test positive for Lyme and other tick-borne co-infections to finally get a diagnosis. Needless to say, this shouldn’t happen.

Unfortunately, many other people go for years suffering without the diagnosis and treatment they desperately need.

When Bad Things Happen And How To Deal

This was the beginning of a very scary and difficult time in my life.

Maybe you know what this is like. Perhaps you find yourself in a seemingly hopeless situation and it seems that your life has been turned upside down.

Losing a job,living with Lyme disease

getting a divorce,

losing a loved one,

or your life’s savings,

getting a diagnosis that turns your life,

or living with Lyme disease

inside out and upside down.

The Takeaway

When you’re stuck in a difficult circumstance and it seems like there’s no hope, what do you do? What are the thoughts that go through your mind?

Here are some ideas that have helped me get through some of my darkest days:

  • My faith in God and His promises have given me comfort and strength. I have many favorite verses in the Bible, but one I keep coming back to is:  Isaiah 40:30–but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
  • dreaming or envisioning what my life will be like when I feel better again
  • writing down or thinking about the people and things I’m thankful for
  • sharing my struggles with family and friends
  • learning as much as I can about my particular health issues and making positive changes in my life, such as eating well and getting enough sleep.
  • Motivational Quotes and Power Phrases

So those are some of the action steps that help me. I hope these ideas will help you when you face struggles, illness or difficult times in your life.

What do you do when you are experiencing difficulties in your life? 

Please share below in the comment section. I’d love to hear your thoughts!

If you’d like to learn more about living with Lyme disease and how to protect your loved ones you might want to read:

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